{"id":11490,"date":"2025-12-24T08:00:16","date_gmt":"2025-12-24T05:00:16","guid":{"rendered":"https:\/\/www.anm.ro\/en\/?p=11490"},"modified":"2026-01-09T11:33:46","modified_gmt":"2026-01-09T08:33:46","slug":"important-notification-24-12-2025","status":"publish","type":"post","link":"https:\/\/www.anm.ro\/en\/important-notification-24-12-2025\/","title":{"rendered":"Important notification"},"content":{"rendered":"<p><strong>24.12.2025<\/strong><br \/>\n<span style=\"color: #333399;\"><strong>To the attention of patient organisations and associations<\/strong><\/span><br \/>\nThe National Agency for Medicines and Medical Devices of Romania starts a procedure to identify patient organizations and associations, in order to transparently create a base which shall facilitate future collaborations.<\/p>\n<p>After previous collaborations, the following organizations and associations have been identified:<\/p>\n<table>\n<tbody>\n<tr>\n<td>The Autoimmune Disease Patients&#8217; Association (APAA)<\/td>\n<\/tr>\n<tr>\n<td>The Coalition of Organisations patients with chronic diseases in Romania (COPAC)<\/td>\n<\/tr>\n<tr>\n<td>The Association of Patients with Thalassemia Major (APTM)<\/td>\n<\/tr>\n<tr>\n<td>The National Alliance for Rare Diseases Romania (ANBRaRo)<\/td>\n<\/tr>\n<tr>\n<td>The Association of Transplantees from Romania (ATR)<\/td>\n<\/tr>\n<tr>\n<td>Romanian Liver Patients Association (APAH-RO)<\/td>\n<\/tr>\n<tr>\n<td>The National Association for Patient Protection (ANPP)<\/td>\n<\/tr>\n<tr>\n<td>The Federation of Cancer Patients Association (FABC)<\/td>\n<\/tr>\n<tr>\n<td>The Alliance of Chronic Patients of Romania<\/td>\n<\/tr>\n<tr>\n<td>The Federation of Diabetic Associations in Romania<\/td>\n<\/tr>\n<tr>\n<td>The P.A.V.E.L. ASSOCIATION (Getting Help, Life is Bright)<\/td>\n<\/tr>\n<tr>\n<td>The Association of Multiple Sclerosis of Romania (ASMR)<\/td>\n<\/tr>\n<tr>\n<td>The Antiparkinson Association<\/td>\n<\/tr>\n<tr>\n<td>The Mastocytosis Support Association\u00a0of Romania<\/td>\n<\/tr>\n<tr>\n<td>The Prader Willi Association of Romania (APWR)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Haemophilia Association<\/td>\n<\/tr>\n<tr>\n<td>The &#8220;Give Life&#8221; Association of Romania<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Rare Cancers Association (ARCrare)<\/td>\n<\/tr>\n<tr>\n<td>The National Union of People infected with HIV\/AIDS Organizations (UNOPA)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Association of Patients with Neuroendocrine Tumours<\/td>\n<\/tr>\n<tr>\n<td>The Mothers for Mothers Association<\/td>\n<\/tr>\n<tr>\n<td>The Association for Supporting Patients with Multidrug Resistant Tuberculosis (ASPTMR)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Association against Leukemia\u00a0(ARIL)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Oncology Patients Association (APOR)<\/td>\n<\/tr>\n<tr>\n<td>The\u00a0Association of Patients with Inflammatory Rheumatic Diseases\u00a0in\u00a0Transylvania\u00a0(ART-Cluj)<\/td>\n<\/tr>\n<tr>\n<td>The Federation of Rights and Resources for People with Autistic Spectrum Disorders (FEDRA)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Association of Scleroderma Patients (APSR)<\/td>\n<\/tr>\n<tr>\n<td>The OncoHelp Association<\/td>\n<\/tr>\n<tr>\n<td>The My Child \u2013 My Heart Association (ACMIM)<\/td>\n<\/tr>\n<tr>\n<td>The Association for Services and Communication in Oncology (APSCO)<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Association\u00a0for\u00a0Long-Hospitalized Newborns\u00a0(ARNIS)<\/td>\n<\/tr>\n<tr>\n<td>The Amuradia Association<\/td>\n<\/tr>\n<tr>\n<td>The Baylor Black Sea Foundation<\/td>\n<\/tr>\n<tr>\n<td>The Romanian Muscular Dystrophy Association (ADMR)<\/td>\n<\/tr>\n<tr>\n<td>The Patients&#8217; College Association<\/td>\n<\/tr>\n<tr>\n<td>The Association for Maternity, Advocacy, Medicine, Education (M.A.M.E)<\/td>\n<\/tr>\n<tr>\n<td>The Association\u00a0for\u00a0Patients with Liver Diseases of Transylvania (formerly known as the Apah-Ro Cluj)<\/td>\n<\/tr>\n<tr>\n<td>The Patients&#8217; Association for the Prevention and Combating of Cerebrovascular Diseases<\/td>\n<\/tr>\n<tr>\n<td>The Association for the Fight Against Stroke (ALIA)<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>Interested persons are asked to send their intention to be introduced into the national database along with their contact details (legal representative, contact numbers, e-mail addresses, field of activity\/area of \u200b\u200binterest) at <a href=\"mailto:detm@anm.ro\">detm@anm.ro<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>24.12.2025 To the attention of patient organisations and associations The National Agency for Medicines and Medical Devices of Romania starts [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[],"class_list":["post-11490","post","type-post","status-publish","format-standard","hentry","category-anunturi-importante-medicamente-de-uz-uman"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/posts\/11490","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/comments?post=11490"}],"version-history":[{"count":0,"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/posts\/11490\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/media?parent=11490"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/categories?post=11490"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.anm.ro\/en\/wp-json\/wp\/v2\/tags?post=11490"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}