24.12.2025
To the attention of patient organisations and associations
The National Agency for Medicines and Medical Devices of Romania starts a procedure to identify patient organizations and associations, in order to transparently create a base which shall facilitate future collaborations.
After previous collaborations, the following organizations and associations have been identified:
| The Autoimmune Disease Patients’ Association (APAA) |
| The Coalition of Organisations patients with chronic diseases in Romania (COPAC) |
| The Association of Patients with Thalassemia Major (APTM) |
| The National Alliance for Rare Diseases Romania (ANBRaRo) |
| The Association of Transplantees from Romania (ATR) |
| Romanian Liver Patients Association (APAH-RO) |
| The National Association for Patient Protection (ANPP) |
| The Federation of Cancer Patients Association (FABC) |
| The Alliance of Chronic Patients of Romania |
| The Federation of Diabetic Associations in Romania |
| The P.A.V.E.L. ASSOCIATION (Getting Help, Life is Bright) |
| The Association of Multiple Sclerosis of Romania (ASMR) |
| The Antiparkinson Association |
| The Mastocytosis Support Association of Romania |
| The Prader Willi Association of Romania (APWR) |
| The Romanian Haemophilia Association |
| The “Give Life” Association of Romania |
| The Romanian Rare Cancers Association (ARCrare) |
| The National Union of People infected with HIV/AIDS Organizations (UNOPA) |
| The Romanian Association of Patients with Neuroendocrine Tumours |
| The Mothers for Mothers Association |
| The Association for Supporting Patients with Multidrug Resistant Tuberculosis (ASPTMR) |
| The Romanian Association against Leukemia (ARIL) |
| The Romanian Oncology Patients Association (APOR) |
| The Association of Patients with Inflammatory Rheumatic Diseases in Transylvania (ART-Cluj) |
| The Federation of Rights and Resources for People with Autistic Spectrum Disorders (FEDRA) |
| The Romanian Association of Scleroderma Patients (APSR) |
| The OncoHelp Association |
| The My Child – My Heart Association (ACMIM) |
| The Association for Services and Communication in Oncology (APSCO) |
| The Romanian Association for Long-Hospitalized Newborns (ARNIS) |
| The Amuradia Association |
| The Baylor Black Sea Foundation |
| The Romanian Muscular Dystrophy Association (ADMR) |
| The Patients’ College Association |
| The Association for Maternity, Advocacy, Medicine, Education (M.A.M.E) |
| The Association for Patients with Liver Diseases of Transylvania (formerly known as the Apah-Ro Cluj) |
| The Patients’ Association for the Prevention and Combating of Cerebrovascular Diseases |
| The Association for the Fight Against Stroke (ALIA) |
Interested persons are asked to send their intention to be introduced into the national database along with their contact details (legal representative, contact numbers, e-mail addresses, field of activity/area of interest) at detm@anm.ro.